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People's Stories
Each person's story is unique.
We know that many people find comfort in hearing from others who have been through something similar.
This page is a work in progress, over time we hope to add and link you to articles, stories and videos.
If you have suggestions or would like to share your story, please send us an email.
In the news
‘A child goes to bed and doesn’t wake up’: the families left in shock after the sudden death of their healthy children.
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Sudden cardiac arrest is a leading cause of death in young Australians, yet it remains critically underfunded, under-researched, and unmonitored. Read the full article here.
It took more than a decade to explain the sudden death of my precious teenage son.
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In this Guardian article, Karen Gardner shares her story and the long journey to identifiy the genetic cause of her son Tom's sudden passing at age 15 years.
Fiona’s 14-year-old son Max was bright and gave enormous bear hugs. She lost him in an instant when his heart suddenly stopped.
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In this article from the Guardian, Fiona Connolly is urging the Australian government to treat sudden cardiac arrests as a public health emergency and fund research into its causes.
Interviews
Triple J Hack Interview: Xavier died in a half marathon. His family is still looking for answers.
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Xavier's mum Alison, opens up about what it's like to lose a child and now urges the government to fund more research into sudden cardiac arrest. Listen to Alison's interview here.