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People's Stories

Each person's story is unique.

We know that many people find comfort in hearing from others who have been through something similar. ​

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This page is a work in progress, over time we hope to add and link you to articles, stories and videos. 

If you have suggestions or would like to share your story, please send us an email. 

In the news
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‘A child goes to bed and doesn’t wake up’: the families left in shock after the sudden death of their healthy children.

Sudden cardiac arrest is a leading cause of death in young Australians, yet it remains critically underfunded, under-researched, and unmonitored. Click on the link for the full story from The Guardian.

Fiona’s 14-year-old son Max was bright and gave enormous bear hugs. She lost him in an instant when his heart suddenly stopped.

Fiona Connolly spoke to The Guardian urging the Australian government to treat sudden cardiac arrests as a public health emergency and fund research into its causes. Click on the link to read The Guardian article.

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It took more than a decade to explain the sudden death of my precious teenage son.

Karen Gardner shares her story and the long journey to identifiy the genetic cause of her son Tom's sudden passing at age 15 years. Click on the link for the full story from The Guardian.

Interviews
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Triple J  Hack Interview: Xavier died in a half marathon. His family is still looking for answers.
  • Xavier's mum Alison, opens up about what it's like to lose a child and now urges the government to fund more research into sudden cardiac arrest. Listen to Alison's Triple J Hack interview here.

ABC NEWS: 22yo Josie Brakey went to sleep one night and never woke up.
  • Anna Brakey's daughter, Josie, passed suddenly in her sleep at the age of 22. Anna spoke to ABC News about the complicated grief she experienced with not having answers. Watch Anna's full interview with ABC here.

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(02) 9056 4099
improvesca@garvan.org.au 

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IMPROVE-SCA acknowledges the First Australian peoples on whose traditional lands we live and work. We pay our respects to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples. We gratefully accept the invitation in the Uluru Statement from the Heart "to walk with us in a movement of the Australian people for a better future”.

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